?DEBRA IRELAND ADVOCACY AND POLICY MANAGER OVERVIEW
SALARY: ?**Apply on the website**,**Apply on the website** -
?**Apply on the website**,**Apply on the website** (FTE), subject to
experience
HOURS: Full-time permanent but potential for 4-day week
REPORTING TO: CEO
LOCATION: 8 Clanwilliam Terrace, Grand Canal Quay, Dublin 2 (_* Note:
in light of the COVID-**Apply on the website** pandemic and
restrictions, this role will be full-time home-based while public
health restrictions remain in place) _
ABOUT DEBRA IRELAND
DEBRA Ireland is an ambitious patient-led charity that?s mission is
to drive research into the devastating condition EB (epidermolysis
bullosa), as well as support families living with EB in Ireland. The
charity is very clear on its vision and mission and is passionate
about achievement and excellence. DEBRA has an open and positive
culture, with a very passionate team and a super loyal donor base.
We offer an exciting opportunity for a proactive, capable and
personable individual with excellent project management and
communication skills to make an impact on behalf of people affected by
EB.
ROLE OVERVIEW
Reporting to the CEO, working closely alongside other members of the
Senior Management Team and collaboratively with people with a lived
experience of EB, the successful candidate will be part of a
passionate, supportive, patient-centred team.
The key elements of this role are to create, implement and drive DEBRA
Ireland?s advocacy strategy against key measurable outcomes and in
line with DEBRA Ireland?s strategic goals. The Advocacy Manager will
develop, implement and evaluate a campaigns strategy to mobilise
public and political support, amplify the voices of experts, and
contribute to a movement to secure lasting changes to policy and
practice for those living with EB, their families and carers.
MAIN DUTIES AND RESPONSIBILITIES?
* Develop, drive and evaluate the advocacy strategy for DEBRA
Ireland.
* Identify and manage national and local advocacy
activities/campaigns in-line with DEBRA?s strategy.
* Drive agreed advocacy campaigns externally from start to finish,
including evaluation.
* Work closely with the Family Support Team to ensure advocacy
campaigns reflect the needs of the EB community.
* Work closely with the Research Team in commissioning, overseeing
and assisting evidence generation required to support access to better
services and treatments for those living with EB.
* Communicate advocacy campaigns and successes to families living
with EB, donors and other key stakeholders. Educating and influencing
appropriate stakeholders where required.
* Proactively develop media engagement, campaign material and
collateral including effective social media elements in collaboration
with the wider team.
* Monitor and contribute to the external political and media
environment and proactively identify opportunities to highlight their
potential impact on patients and families living with EB.
* Work with public representatives, health and social care services
and civic organisations where there are links to joint advocacy and/or
public engagement initiatives.
* Develop and maintain a diverse network of political and peer
contacts and champions for DEBRA?s advocacy agenda.
* Contribute to national and international advocacy forums and
policy development.
* Ensure compliance and adherence with Lobbying Act, Freedom of
Information Act and Data Protection Acts.
* Develop DEBRA policies relating to advocacy.
This job description acts as a guide to the role of Advocacy Manager.
The role may change to meet the changing requirements of the
organisation at any time, after discussion with the post holder.
KNOWLEDGE/ EXPERIENCE
_ESSENTIAL_
* A degree level qualification.
* Enthusiasm for the overall vision of DEBRA Ireland.
* A seasoned track record in achieving change through advocacy,
policy and building partnerships.
* Demonstrable ability to network effectively and build strong
external relationships and advance the advocacy agenda.
* Experience in engaging with and understanding the Irish political,
health and social care system as they relate to the advocacy agenda.
* Knowledge of legislative processes, government committees and
other structures to enhance development of policy improvements.
* Strong strategic understanding of digital communications,
traditional media and social media strategies as tools for promotion
and engagement.
* A team player with excellent people skills to engage and unify
staff, service users and the wider EB community on campaigns and
projects.
* Naturally creative, enjoy idea generation and demonstrate
innovative and strategic thinking in stakeholder engagement and
outreach campaigns.
* Demonstrable project management skills - showing the ability to
drive ideas and oversee projects from creation to completion.
* Self-motivated and capable of working independently with a strong
work ethic.
* Flexibility to occasionally travel and work outside standard
hours.
_DESIRABLE_
* Experience working in the charity sector.
* Experience working in a political environment.
TO APPLY
Interested candidates should submit a copy of their CV and cover
letter to **Apply on the website**.
Closing date for applications is the **APPLY ON THE WEBSITE**TH JUNE
**APPLY ON THE WEBSITE** AT 5PM.
For informal queries please contact **Apply on the website**.
_DEBRA IRELAND IS AN EQUAL OPPORTUNITIES EMPLOYER _
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We need : English (Good)
Type: Permanent
Payment:
Category: Health
